
I feel well. I feel really well. Oh what a privilege it is to be well! For those of us navigating hidden disability wellness, we know that truly feeling good is never something to take for granted.
I was thinking that the other day. How incredibly wonderful and blessed and lucky and joyous it is to be in good health and feeling good. We take it for granted right?
I recently had a vaccination for meningococcal meningitis and I’d read that there were some possible, mild, side effects. Mostly the usual numbness to the arm receiving the injection. I didn’t think anything of it. I had loads of vaccines over the course of my life, so nothing new there.
Or so I thought….
The 66-Hour Shift: Why Fluctuation Matters in Hidden Disability Wellness
12 hours later…..
So I had the injection at about 1pm on a Thursday, and all was well until I was woken up at about 1 am by this strange shivering feeling…..I thought I was having a dream where I was shivering in the dream….. anyway I woke up and OMGoodness!!! Teeth shattering, but I was hot to touch, more like burning up. My head was aching, my back was aching, my stomach felt queasy. What the ***?
I started to strategise in my head what my next steps should be. “Tessa you need to hydrate. Get up and drink some water, then drink some aloe vera, take some paracetamol, take some zinc sulphate and a vitamin C? Okay that’s a good plan, but first how are you going to get up off this bed? Can you push yourself up? maybe roll onto your belly first? “
“Ah, but I’ve got to go to the loo first before the kitchen……but I’m shivering ?? Okay just grab the throw off the bed and wrap it around you…..bathroom first, then kitchen……. come on Tessa you’ve got this, you can do it. God in your strength not mine….. You’ll have to carry me there…….! And when you’re in the kitchen, grab the lavender wheat bag from the freezer……… it might help putting it on the back of your neck……..Okay, ready? 3-2-1 let’s go….”
Does any of this resonate with you?
So, I follow the steps of my strategy and make it to the bathroom, and somehow make it to the kitchen, though when I’m trying to stand, I realise that my body feels as though it has been in a boxing match but my opponent forgot to wear his gloves……..I just felt heavy and sore all over….. what is going on?
I’m back in my bed (Thank You Jesus! how did that happen?) and time passes and it is 9 am Friday, and I’m still feeling so rough. My head is pounding and now my neck feels swollen, my throat is sore and I’ve still got this temperature……..
24 hours…
It’s not even 24 hours since I had the injection…….. how can my body’s standard operating procedure be changed so drastically and so quickly??? Perhaps I’ve stepped into some alternate universe? Some portal activated by the solar eclipse the other day?
It is a work day. I try to do some work on the laptop, but by 1pm I have to admit that I’m too sick to work, and these ‘minor side-effects’ are still here and majorly impacting my body and day……
36 hours ……
36 hours later…….I’m starting to feel less hot, my headache is still there but it is pounding far less, I feel like I could sleep off undisturbed for a good few hours and I start to breathe a sigh of relief….
48 hours……
It is Saturday, 48 hours later, and I’m starting to feel better, though I look in the mirror, into my eyes, I look at my face, and I don’t look great, I look tired, and not myself. I look strained and drained. My eyes look sunken and distant. It’s obvious that I’m not quite there yet, but at least I’m headed in the right direction. I give myself lots of love and kindness and just keep letting things run their course.
66 hours later and counting…..
Now it is Sunday, 66 plus hours and counting, and I’m breathing deeply and calmly. I slept for a solid 7 hours straight last night. I feel like I’ve been through something significant, and come out of the other side. No one noticed. No one saw. The world continued to move forward and continue with its noise and movement and activity and drama and sunshine and birdsong and construction. Meanwhile, something momentous was happening here in my quiet world………I was starting to feel well again……..
Now I’m wondering if it was all I dream…. but I’m so overwhelmed with gratitude. What a privilege it is to be well! To feel well. To feel really WELL.
As the side effects finally faded and wellness returned, I was reminded of the core of hidden disability wellness: immense gratitude for the moments we feel truly WELL.








